Ok, so I just had the time to fully read this and it hit pretty hard.
I have meet Mohamed Bzeek several times over the years, through my work, and have been to his house. I have seen some of those terminally ill kids
He is great guy, his wife Dawn was awesome, did not know she had passed, very sad. His son Adam is a cool kid, even with his condition he seems always happy. I have not seen him in a while but every time I saw him here is this kid with brittle bone disease and dwarfism, a twisted tiny body, he always had a smile. Always said a cheerful "hello!" and chatted while either sitting in his motorized wheelchair or scooting around on his homemade skateboard. And you can tell very quickly that Adam is smart as hell. Guys on my crew dubbed him the next Steven Hawking. Good to read he is following his dreams.
Every time I , or the guys on my crew, visit Mohamed Bzeek you leave his place both encouraged and depressed as hell. Encouraged because Mohamed and Dawn were so giving and courageous for doing what they did and because Adam is so cool and friendly. Depressed as hell because usually when you went in it was a different sick child and you know the one you saw last time had died and at times the child you saw at the time looked so sick you know they did not have long to live. One time there was this girl, who had very serous issues and while I was there had breathing problems, gasped for breath all of sudden and screamed. Dawn jumped into action like pro and took care of everything. like an Army medic on the battle field. I have to admit I was rattled but I did my best not to let it show.
Me and the guys are always amazed with him, we don't how is he able to do all this for so long.
Mohamed Bzeek is a true hero.